Post by FlagmanRuss on Jul 30, 2010 13:21:52 GMT -5
This has come up before. I think this is a very bias study... and chooses arbitrary levels to evaluate. NOTE this review was paid for by British Public Health Service who has a vested interest in NOT PAYING FOR DMDs. DMDs are well proven to reduce relapses which immediately has the benifit of us not having to live through them... improving our quality of life. Avoiding relapses avoids the severe & lasting damages they can cause. I DO believe that improves the odds of delaying the accumulated disability. I sincerely wish my Dx had been earlier... so I could have begun DMT sooner, when it is most effective... prehaps even allowing MSers a chance to continue being gainfully employed longer. Russ
Dx Secondary Progressive MS 2002, Copaxone 2001-2007, Tysabri 2007-2009 (32), LDN (since 6.2010), Biotin perstudy 8.2015 RIH MS Center Married, grown children, grand & greatgrand kids! 'President' of "MS Stuntmans Association" Mobility: shuffle, walls, cane, walker, scooter, sometimes all of the above
Thanks for posting this! The previous paper that I posted from the Direct MS foundation was quoting several retrospective studies. The majority of clinical trials are prospective with double blind randomized placebo controlled protocols. Comparing the two is akin to comparing apples and oranges. Prospective studies hold much more credibility than retrospective studies. Looking back many years in time at information that has already occurred can be fraught with errors and confounding factors or variables.
I agree that the UK study has a vested interest in disproving DMD's for financial reasons. This study could also be accused of having a bias.
I also agree with Russ that quality of life is HUGE!
Hi Gee Gang! I wish NOT to influence anyone's decision, but ONLY report MY decision(s). I have been Dxed with MS for nearly 20 years. The Betaserons@, were approved, and I elected Avonex. One poke-a-week was enough for me. I managed to "Hang Onto" my job and insurance for a few years, Unil my wife's career career blossomed! Yes, there is a reduced function of Balance, and Cognitive issues, but I am not 30 years old anymore. I have been on SSDSI for 4+ years now. I don't even miss the "Desk" job anymore. (or the wheel barrow). I have accepted MY NEW LIFE, and now embrace MY LIFESTYLE. I respect the advice of the Medical Team, and that of my new circle of friends. BUT I am ME! I research new developements of MS Research, and eveluate how it will help a "58 yr. old guy". There is a "Cost / Benefit factor here!". Oh to be 30 instead of near 60.. I understand!!! So, I understand MORE, and help where I can, those as Fortunate as ME, see the NEW LIFE ahead, and the HUMOR in MY affliction. Until the RIVER card is dealt, There is HOPE! HaGrtD Mike
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