Post by FlagmanRuss on Jul 30, 2010 13:21:52 GMT -5
This has come up before. I think this is a very bias study... and chooses arbitrary levels to evaluate. NOTE this review was paid for by British Public Health Service who has a vested interest in NOT PAYING FOR DMDs. DMDs are well proven to reduce relapses which immediately has the benifit of us not having to live through them... improving our quality of life. Avoiding relapses avoids the severe & lasting damages they can cause. I DO believe that improves the odds of delaying the accumulated disability. I sincerely wish my Dx had been earlier... so I could have begun DMT sooner, when it is most effective... prehaps even allowing MSers a chance to continue being gainfully employed longer. Russ
symptoms 10 years prior, Dx RR 2001, Copaxone 2001-2007, Tysabri 2007-2009 (32), Secondary Progressive MS (2002), LDN (Ju 2010). Ended "Pulse Steroids" No benifit RIH MS Center
Married, grown children, grand & greatgrand kids!
'President' of "MS Stuntmans Association"
Mobility: shuffle, walls, cane, walker, scooter
Thanks for posting this! The previous paper that I posted from the Direct MS foundation was quoting several retrospective studies. The majority of clinical trials are prospective with double blind randomized placebo controlled protocols. Comparing the two is akin to comparing apples and oranges. Prospective studies hold much more credibility than retrospective studies. Looking back many years in time at information that has already occurred can be fraught with errors and confounding factors or variables.
I agree that the UK study has a vested interest in disproving DMD's for financial reasons. This study could also be accused of having a bias.
I also agree with Russ that quality of life is HUGE!
Hi Gee Gang! I wish NOT to influence anyone's decision, but ONLY report MY decision(s). I have been Dxed with MS for nearly 20 years. The Betaserons@, were approved, and I elected Avonex. One poke-a-week was enough for me. I managed to "Hang Onto" my job and insurance for a few years, Unil my wife's career career blossomed! Yes, there is a reduced function of Balance, and Cognitive issues, but I am not 30 years old anymore. I have been on SSDSI for 4+ years now. I don't even miss the "Desk" job anymore. (or the wheel barrow). I have accepted MY NEW LIFE, and now embrace MY LIFESTYLE. I respect the advice of the Medical Team, and that of my new circle of friends. BUT I am ME! I research new developements of MS Research, and eveluate how it will help a "58 yr. old guy". There is a "Cost / Benefit factor here!". Oh to be 30 instead of near 60.. I understand!!! So, I understand MORE, and help where I can, those as Fortunate as ME, see the NEW LIFE ahead, and the HUMOR in MY affliction. Until the RIVER card is dealt, There is HOPE! HaGrtD Mike
FlagmanRuss: I've not been 'slacking', reviewing the authorizations for our Moderators under V5. Changes
Jan 15, 2014 12:14:17 GMT -5
nanigoogoo: I am totally clueless on how to use MS refugees...help?!
Jan 20, 2014 19:30:55 GMT -5
holly (holly000): Nanigoogoo, how can I help? Send me a PM with any questions, and I'll try to be helpful.
Jan 23, 2014 21:54:41 GMT -5
janeposk: didn't mean to shout!!!!!!!! my bad
Jan 24, 2014 6:58:01 GMT -5
sam23x: When I click on new posts legend nothing happens.
Jan 28, 2014 15:01:29 GMT -5
ev: To see new posts, click on Recent Posts. which can be found in the Forum and Statistics Section, near the bottom. These are still there & working.
Feb 1, 2014 0:03:58 GMT -5
FlagmanRuss: Agree, I click on the Recent Posts. Confusing "Legend" section... they are not buttons. A V5 waste of space! I was able to make them go away.
Feb 1, 2014 8:34:06 GMT -5
FlagmanRuss: I've added "RECENT POSTS' and "RECENT THREADS" buttons to the header for member convenience! Remember, you must be logged in to POST. Thank you for your co-operation.
Feb 7, 2014 19:29:36 GMT -5
ev: Russ, Thanks for adding Recent Posts to the header. So much easier to navigate.
Feb 9, 2014 12:25:12 GMT -5
FlagmanRuss: After using either the "Recent Posts" you scroll down. If you find something you want to see the whole thread, you have to look to the left for the light blue highlighted link which opens the thread. It's pretty hard to see. Is this the problem?
Feb 9, 2014 21:29:17 GMT -5
pandora: Enter your reply here...The extremes are what bothers me the most. the artic cold we've had this winter has me swollen and tored all the time. During summer it's the hot humid days that knock me to the ground.
Feb 10, 2014 20:33:21 GMT -5
snarky: Sorry ,I posted wrong again, this to me is so confusing compared to the old way.. I cannot find the proper way to link to answer on a post... and wher edo you press to enter your reply / a big DUH>> I am giving up..
Feb 11, 2014 12:27:00 GMT -5
blunder95237: Thank you all for your input. I have been taking bit D3-2000 for about 9 months now, but I have been rather lax on the calcium, guess that won't be the case anymore..
Feb 18, 2014 22:39:24 GMT -5
imdhreeves: Hello, I just tried to do an introduction but the typing terminated after one line. I am obviously doing something wrong. Help please.
Feb 24, 2014 8:03:41 GMT -5
FlagmanRuss: Please try again. You have to scroll all the way to the bottom to find the SAVE button.
Feb 25, 2014 8:57:21 GMT -5
FlagmanRuss: The "Participated" button apparently confused a lot of members, including staff. I found out that it was only posts that the individual member had already posted in. To prevent further confusion, I removed it. Please use the Recent Posts link above.
Feb 25, 2014 21:32:00 GMT -5
FlagmanRuss: Good conversation about newcomers not knowing where MS Refugees came from. I've relocated the info to be highly visible. Not necessarily carved in stone, a work in progress. Moved Board tips to the bottom, for now.
Feb 28, 2014 21:34:04 GMT -5
FlagmanRuss: More tweaks on text size today.
Mar 1, 2014 8:50:49 GMT -5
FlagmanRuss: I emailed a member who had not logged on in 2 1/2 weeks. Said she'd "driven by" but saw no new posts. I think she had used the misleading PARTICIPATED button which fooled members & staff. PLEASE use the recent posts links in the blue at top
Mar 2, 2014 7:44:33 GMT -5
FlagmanRuss: ProBoards provided a plug in to put a REPLY button on the top of each post including in the 'Most Recent' which is a search function. It should have been DEFAULT, should not have had to ask for it. It's up & working now.
Mar 3, 2014 11:41:50 GMT -5
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