I just got fitted with a Walk Aid AFO. My left foot has no feeling, hence the need for an aid. I can't get my foot in my shoe by myself with the aid. Am I missing something that is so obvious no one thinks to tell you about it? I am so frustrated right now, I just want to throw the darned thing (note, I am thinking much more colorful adjectives other than darned, heck, a few nouns and verb as well!) across the room. Hubby helps me get it on, but what do I do when he is not home? What is the point if I can't get it on myself? I have 4 different pairs or shoes it fits in, I can't get any on myself with the AFO, including the pair of New Balance tennies that the initial fit was with. Yes, I am using a shoe horn to try. Help!!!
I definitely can sympathize and feel your pain. I have an AFO too and had to buy NB running shoe a full 2 sizes larger to accommodate the orthotics. My feet swell so much and this may be why it I had to get such a larger size. New Balance running shoe in a wide width was recommended by the orthotic tech but I think NB does run a bit small. I got a running shoe but would not recommend getting it with a lug sole. Mine seem to impede my walking ability when the ground is not entirely flat. It seems like I am forever searching for that perfect shoe. Have you tried to put the AFO in the shoe first and then put your foot in the shoe? This is the only way I can get the AFO on. It is also easier to take it off by leaving the AFO in the shoe and pushing the AFO away from the top. I hope this helps.
Hello all, I recommend that you try a TOE-Off AFO by Allard. Check it out on their web site. It easily fits within most shoes by simply removing the inner pad on the affected side. So NO MORE buying 2 different sized shoes, and it is possible to wear light weight flat shoes again! Check it out, you won't be disappointed! I am an OT and believe me this is easier than messing w/all those other adaptive devices!! Good luck, Leslie
Definitely try putting it in your shoe first and keep the laces of your shoe wide open and loose. Once it is in, just slip your foot in and adjust. Like Karenlynn said, leaving it in is handy too. It becomes like a long shoe, lol to slip on and off. The key is just having everything loose and open and then tightening. The shoehorn never worked for me.
Hi Leslie, I checked out the toe-off and it looked very cool. But, listed as a contraindication is loss of skin sensitivity, I think a pretty common problem in MS footdrop.
I already broke my hinged/articulated AFO twice (now I have it so it is sturdier, lol) and this type is much stronger than the toe-off so I would definitely be one of the patients to break the toe off repeatedly!
Mine is padded so that there will not be skin damage because I can't feel a sore start. But this type of brace is useful for stairs and bending.
Hi Deb, The manner in which the two AFO'S work is completely different. The Toe-Off provides input on the shin side of your leg which places your weight shift in the foward plane and facilitates a smoother toe-off gait pattern. The more traditional AFO that you have provides input to the calf side and does not pro vide for as dynamic a movement pattern. The Toe-Off is very strong/light and is made of carbon fiber and kevlar. Is the reason that you are breaking the AFO'S related to spasticity? I use Baclofen to decrease spasticity (10 mg every three hours) which really helps to manage this. I too have decreased sensitivity, to my right foot and I am able to use the Toe-Off with no problem. Thanks for sharing! Leslie
Thank you all so much for your responses. I am using a Walk On, my neuro prescribed a low profile carbon AFO so I was referred to a rehab hospital to get one fitted. Is this something that requires fitting? I didn't realize I might have a choice on them. Since I have insurance, I guess I just felt I had to get what was recommended for insurance to pay. How much do AFO's cost if you are paying? I saw some when I did a search but didn't consider anything not recommended by a medical professional. I am new to this part of my medical care so please have patience for my questions that I am sure must be no-brainers for those of you who have been dealing with this for a while. My AFO is made of metal so there is no give at all. Gertting in and out of a car gracefully is no longer possible. We bought one of the real long shoe horns but I just can't seem to manage to use it to successfully get my shoe on "all by myself". This whole thing has been awful because I have happily been getting by in my state of denial and didn't realize how much help with daily living I have needed. On the good side: it doesn't require different shoe sizes and I can wear regular shoes. I have found decent looking styles one with Dr. Scholls and Sketchers. I got to do some shoe shopping the info on this site has been WONDERFUL...thank you all so much!
I do have spasticity for which I take Baclofen, but I broke it because I am very active and went a little overboard once I was no longer tripping over my foot! It has held up now with reinforcement since May. My brace is good because of the hinge. I was told that because of that, my muscles will not atrophy, they are able to have motion and the ones that are weak can move as much as they are able, which gives them a workout.
What I read is that a contraindication for the toe off was numbness and both of my legs are very numb. I cannot feel pressure or sharp stuff on my right side where I have the brace. I also read that it tends to break for 50% of people, the other 50% do well with it. That is what I meant about it probably not being good for me!
It sounds like it would be a really great option for some people though. Especially it would be nice because it is so light.
By the way, I heard there is some kind of foot drop brace suitable for running? Do you know what it is called? I cannot find it when I google it but I heard of it earlier this year. It doesn't look like the toe off though.
So with a boundless heart Should one cherish all living beings: Radiating kindness over the entire world
ev: Russ, Thanks for adding Recent Posts to the header. So much easier to navigate.
Feb 9, 2014 12:25:12 GMT -5
FlagmanRuss: After using either the "Recent Posts" you scroll down. If you find something you want to see the whole thread, you have to look to the left for the light blue highlighted link which opens the thread. It's pretty hard to see. Is this the problem?
Feb 9, 2014 21:29:17 GMT -5
pandora: Enter your reply here...The extremes are what bothers me the most. the artic cold we've had this winter has me swollen and tored all the time. During summer it's the hot humid days that knock me to the ground.
Feb 10, 2014 20:33:21 GMT -5
snarky: Sorry ,I posted wrong again, this to me is so confusing compared to the old way.. I cannot find the proper way to link to answer on a post... and wher edo you press to enter your reply / a big DUH>> I am giving up..
Feb 11, 2014 12:27:00 GMT -5
blunder95237: Thank you all for your input. I have been taking bit D3-2000 for about 9 months now, but I have been rather lax on the calcium, guess that won't be the case anymore..
Feb 18, 2014 22:39:24 GMT -5
imdhreeves: Hello, I just tried to do an introduction but the typing terminated after one line. I am obviously doing something wrong. Help please.
Feb 24, 2014 8:03:41 GMT -5
FlagmanRuss: Please try again. You have to scroll all the way to the bottom to find the SAVE button.
Feb 25, 2014 8:57:21 GMT -5
FlagmanRuss: The "Participated" button apparently confused a lot of members, including staff. I found out that it was only posts that the individual member had already posted in. To prevent further confusion, I removed it. Please use the Recent Posts link above.
Feb 25, 2014 21:32:00 GMT -5
FlagmanRuss: Good conversation about newcomers not knowing where MS Refugees came from. I've relocated the info to be highly visible. Not necessarily carved in stone, a work in progress. Moved Board tips to the bottom, for now.
Feb 28, 2014 21:34:04 GMT -5
FlagmanRuss: More tweaks on text size today.
Mar 1, 2014 8:50:49 GMT -5
FlagmanRuss: I emailed a member who had not logged on in 2 1/2 weeks. Said she'd "driven by" but saw no new posts. I think she had used the misleading PARTICIPATED button which fooled members & staff. PLEASE use the recent posts links in the blue at top
Mar 2, 2014 7:44:33 GMT -5
FlagmanRuss: ProBoards provided a plug in to put a REPLY button on the top of each post including in the 'Most Recent' which is a search function. It should have been DEFAULT, should not have had to ask for it. It's up & working now.
Mar 3, 2014 11:41:50 GMT -5
FlagmanRuss: Shelly inquired about spell check with is not included in V5. PB support stated that most browsers include spell check but some older versions do not. I was able to add a Spell Check plug in from PB Support library. Button at the bottom!
Mar 20, 2014 18:38:03 GMT -5
Shelly1: Yeah spell check is back in the options when you create a new post.
Mar 21, 2014 9:27:14 GMT -5
agordon20: I was a spelling bee champ in school, but these days - though I hate to admit it - I need spell check! Thanks!
Mar 26, 2014 14:15:54 GMT -5
mack: If post has no errors with spell check it does not inform user. Kind of made it feel like a puter hang.
Apr 1, 2014 17:37:50 GMT -5
snarky: Hi Russ, I think I put Mack's birthday wishes in the wrong place, if so could you attach it where it belongs.. I still can't get the hang of this new way..thanks Carol
Apr 5, 2014 8:09:31 GMT -5
agordon20: DO NOT GET YOUR PNEUMONIA AND SHINGLES VACCINES THE SAME DAY! I am sicker than a dog, aching, temp of 102 degrees. Simply awful. So much for docs knowing what they're doing!
Apr 12, 2014 10:32:08 GMT -5
courde99: Hi, I have been on copaxone since October of 2013. Has anyone else had severe itchy dry scalp. I am losing my mind. I feel like i have bugs in my hair. Any words of advice or if anyone has had a similar situation
Apr 14, 2014 13:59:29 GMT -5
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