Members Getting Aquainted

Board Threads Posts Last Post
No New Posts MS REFUGEES, our name, our group

This group started as a community helping each other on a board sponsored by a major drug company. When that company discontinued their message boards the group decided to find a New Home... we became MS Refugees.

3 9 How we came to be MS Refugees
by staff
Mar 23, 2012 9:07:31 GMT -5

Living With Multiple Sclerosis

Board Threads Posts Last Post
No New Posts General Questions, Answers and Ideas About Living With Multiple Sclerosis

How has MS affected you? How do you deal with the necessary changes? Members Tips!

2,521 25,089 Questions for those who are SPMS
by pepedog
Nov 14, 2017 18:28:42 GMT -5
No New Posts MS Stuntman's Association

I originated this tongue-in-cheek humorous way as a way of dealing with the creative twists & twirls, slips & falls. Obiviously it resonated with many others. It's a lot more funny after... not so much if we end up injured.

7 190 MS STUNTMAN'S ASSOCIATION
by FlagmanRuss
Jul 22, 2017 14:35:19 GMT -5
No New Posts Assistive Aids for Living with MS - 2 Viewing

Discussions on all unistalled assistive devises: wheelchairs, scooters, canes, braces, jar openers, clothes hooks, etc.

Sub-boards: Pads & Cushions, Braces & Functional Stimulators, Canes & Crutches, Walkers & Rollators, Wheelchairs, Scooters & Powerchairs

241 1,584 Tens Unit
by holly
Nov 21, 2017 10:35:26 GMT -5
No New Posts Home Mods for Disability

Discuss all installed assistive items here.

Sub-boards: Bathroom , Stair Lifts, Ramps

20 158 Designing a HC shower
by holly
Dec 6, 2017 20:01:59 GMT -5

Newly Diagnosed & Those In Limbo

Board Threads Posts Last Post
No New Posts Newly Diagnosed with Multiple Sclerosis and Those in Limboland

Ask questions here. No question is stupid and information is ammunition in the war against MS!

195 1,751 Police, driving, MS and DUI?
by FlagmanRuss
Sept 28, 2016 9:14:52 GMT -5

A MS Referance Library

Board Threads Posts Last Post
No New Posts Front Page MS News

588 1,246 Pat with complete SC Injury regains voluntarary function
by FlagmanRuss
Oct 29, 2017 9:01:38 GMT -5
No New Posts General MS Information

39 70 Research
by holly
Jun 5, 2014 12:45:13 GMT -5
No New Posts Testing & Diagnosis

42 78 Neuropsychological Evaluation
by staff
Dec 15, 2008 14:13:24 GMT -5
No New Posts MS Symptoms

Except as noted

32 42 Re: Exercise
by staff
Dec 19, 2008 19:53:29 GMT -5
No New Posts Mobility Symptoms

6 43 Right Leg vs. Left Leg
by FlagmanRuss
Jul 15, 2017 8:26:59 GMT -5
No New Posts Relapses / Exacerbations / Flare Ups

18 20 Exacerbation vs. Pseudo-Exacerbation
by staff
Dec 19, 2008 19:56:01 GMT -5
No New Posts Vision & Optic Neuritis

7 21 Optic Neuritis...no MS
by FlagmanRuss
Jul 10, 2016 19:53:52 GMT -5
No New Posts Cognitive Symptoms

43 68 Cognitive-Behavioral Therapy Improves Fatigue in MS Patients
by Shelly1
Jun 3, 2014 10:51:07 GMT -5
No New Posts Bladder, Bowel Symptoms

16 87 Bladder Issues Article NMSS
by FlagmanRuss
Oct 2, 2015 19:47:06 GMT -5
No New Posts Pain & It's Treatment

11 14 Acuncture Superior to Usual Care 4 Chronic Pain
by Shelly1
Sept 11, 2012 17:44:55 GMT -5
No New Posts MS: Brain & Central Nervious System

96 126 Brain atrophy and disability progression in MS patients
by Shelly1
Mar 7, 2014 9:39:06 GMT -5
No New Posts Immune System

28 38 Cytokine Responses to Resistance Training
by FlagmanRuss
Sept 27, 2013 9:35:48 GMT -5
No New Posts Experimental MS Treatment - 1 Viewing

64 88 Adding Estriol Reduces MS Relapse Rate
by Shelly1
May 4, 2014 9:43:32 GMT -5
No New Posts Research Studies

37 64 Man brain dead in drug trial
by FlagmanRuss
Jan 18, 2016 20:13:03 GMT -5
No New Posts Chronic Cerebrospinal Vascular Insufficiency (CCSVI) - 1 Viewing

Further Research has DISPROVED this theory of a possible cause of MS

203 705 Italian blood flow to the brain theory/study appears to have
by Shelly1
Aug 25, 2014 13:40:01 GMT -5

Treatments

Board Threads Posts Last Post
No New Posts FDA Approved Treatments for Multiple Sclerosis

general discussion

124 850 Steroids and Bloating
by holly
Dec 5, 2016 19:48:30 GMT -5
No New Posts Avonex, (Interferon) IM Injection

65 397 An Anniversary
by gypse2
Oct 29, 2017 20:50:08 GMT -5
No New Posts Aubagio (Teriflunomide) Oral - 1 Viewing

16 131 Started Aubagio today
by Diana
Nov 14, 2017 22:38:27 GMT -5
No New Posts Betaseron, (Interferon) Injection

23 76 Copaxone to Betaseron...thoughts?
by FlagmanRuss
Jan 15, 2011 9:13:52 GMT -5
No New Posts Copaxone, (glatiramer acetate) Injection

312 2,444 New Glatiramer Acetate Generic Equivalent to Copaxone in MS
by Shelly1
Nov 12, 2015 7:28:19 GMT -5
No New Posts Extavia, (Interferon) Injection

2 2 Extavia
by staff
Feb 15, 2012 11:31:08 GMT -5
No New Posts Gilenya (formerly fingolimod), Oral

65 248 Anyone Else on Gilenya Experience Increased Allergies?
by Diana
Sept 27, 2015 17:47:39 GMT -5
No New Posts Glatopa (Glatiramer Acetate), daily 20 mg injection

Generic Copaxone

1 1 Glatopa.com
by FlagmanRuss
Dec 16, 2015 9:50:29 GMT -5
No New Posts Lemtrada™ (alemtuzumab) (formerly Campath 1-H) IV Infusion

23 35 Lemtrada (Alemtuzumab) in MS: Still Looks Good at 5 Years
by Shelly1
Oct 15, 2015 10:02:07 GMT -5
No New Posts Novantrone & Cytoxan, IV Infusion

(Immune Suppressing Chemo Agents)

46 207 Leukemia from Novantrone?
by Ditzy
Jun 14, 2012 19:28:11 GMT -5
No New Posts Ocevus (Ocrelizumab)infusion 6 month

4 40 Starting Ocrevus very soon
by holly
Dec 9, 2017 12:51:20 GMT -5
No New Posts Plegridy Interferon Injection

0 0 No posts have been made on this board.
No New Posts Rebif, (Interferon) Injection

46 328 Drug Research
by holly
Feb 11, 2013 11:11:54 GMT -5
No New Posts Rituxan (Ocrelizumab) IV Infusion - 1 Viewing

FDA approved for Reumathoid Arthritis, OFF LABEL use for MS (Immune Suppressing Chemo Agent)

12 58 My Persional Rituxan Results
by gypse2
Dec 5, 2015 21:16:28 GMT -5
No New Posts Tecfidera (formerly BG12), Oral

55 380 facial skin problems tecfidera
by Shelly1
Mar 24, 2015 5:55:48 GMT -5
No New Posts Tysabri, (natalizumab) IV Infusion

480 3,441 Prob going back to the hospital. Tysabri not for me!
by FlagmanRuss
Oct 9, 2017 8:04:41 GMT -5
No New Posts MS Treatments & Meds In The Pipeline

Here's the spot for news on new drugs being tested and developed.

259 614 Ocrevus
by FlagmanRuss
Jul 18, 2017 13:28:48 GMT -5

Symptom Medications and Treatments

Board Threads Posts Last Post
No New Posts Symptom Medications useful in Multiple Sclerosis

Here's the place to discuss the meds which make MS easier to live with.
Treatment of Relape / Excaserbation symptoms included here.

424 2,859 Anyone try new Trokendi XR for pain?
by Puppyducky
Nov 23, 2017 8:31:53 GMT -5
No New Posts Steroids IV & Oral

Discuss IV Steroids like Solumedrol & Oral like Prednisone here... They help shut down Excaserbations... the down side

4 16 small dose of steroids-BIG difference
by FlagmanRuss
Nov 29, 2017 9:32:46 GMT -5
No New Posts Botox for Bladder

Discuss the pros & cons of Botox injections for bladder control here

5 6 Botox for OAB (Over Active Bladder)
by FlagmanRuss
Nov 6, 2014 19:04:39 GMT -5
No New Posts Ampyra / 4-AP (Predecessor)

Sustained release Ampyra, Fast acting Compounded 4-AP for improved nerve conduction.

22 165 Ampyra... it's plusses & minuses
by janeposk
Nov 12, 2014 6:25:51 GMT -5
No New Posts Low Dose Naltrexone

Information and discussions about LDN use for Multiple Sclerosis. Questions Welcome!

54 350 Nat Institute of Health on LDN
by FlagmanRuss
Oct 19, 2016 15:10:10 GMT -5
No New Posts OFF Label use of Prescription Drugs

Prescription Drugs used Off-Label Drugs for MS as directed my your physician.

112 662 Too much of a good thing
by holly
Nov 23, 2017 16:05:10 GMT -5
No New Posts Cannibus

Medical Marijuana for locations where it's medical use is now legal

12 106 CBD oil
by mack
Dec 5, 2017 11:03:04 GMT -5
No New Posts Supplements & MS - 1 Viewing

Vitamins, Minerals and Herbs useful for Multiple Sclerosis

57 288 Biotin benefits ‘clinically relevant’ in progressive MS
by gypse2
Oct 24, 2017 14:21:09 GMT -5

Ladies Only / Men's Only

Board Threads Posts Last Post
No New Posts Intimacy Issues for those with Multiple Sclerosis

NOTICE: Content in this section deals frankly with adult topics & may be offensive to some. 18 and over please! LADIES / MENS forums are RESTRICTED to Logged In Members.

N/A N/A No posts have been made on this board.

Diet, Exercise, Physical Therapy

Board Threads Posts Last Post
No New Posts Exercise, Physical Therapy, Theraputic Activities

195 1,788 Dancing With MS
by Shelly1
Jun 23, 2015 16:57:31 GMT -5
No New Posts Diet

The FOOD we eat.

Sub-boards: MS Diet, Low Calorie Diet, Low Carb Diet

92 939 Hot Chocolate... on a diet
by FlagmanRuss
Feb 28, 2016 10:47:17 GMT -5

Special Issues

Board Threads Posts Last Post
No New Posts Disability, Claims & Insurance Information

Discuss Disability and Insurance

293 2,047 Has anyone gotten on disability (not SSDI) without a lawyer?
by holly
May 18, 2017 11:58:00 GMT -5
No New Posts Work Related Issues

Looking for work, Leaving work or just flat dealing with it.

Sub-board: Work At Home

91 668 SSDI and Retirement benefits
by ressa
Sept 8, 2013 17:12:24 GMT -5
No New Posts Scams & Ripoffs

Unscrupulous practices designed to separate us from our hard earned money.

106 254 PHONE SCAMMERS using local numbers
by FlagmanRuss
May 21, 2017 8:32:01 GMT -5

Resources

Board Threads Posts Last Post
No New Posts Off Site Resources & Helpful Links for those with Multiple Sclerosis

136 440 Wheel Chair Labs
by FlagmanRuss
Jun 5, 2017 21:22:25 GMT -5
No New Posts Links to informational sites

122 276 MS Foundation
by ev
Aug 22, 2012 21:22:03 GMT -5
No New Posts Members Businesses and For Sale

N/A N/A No posts have been made on this board.

Off Topic

Board Threads Posts Last Post
No New Posts Free For All

1,310 10,296 We have lost another Gee
by sharonkerry
Nov 22, 2017 22:36:52 GMT -5
No New Posts The Pressure Cooker!

If you need to blow off some steam, this is the place.

637 7,107 What a blessing!
by FlagmanRuss
Nov 29, 2017 9:36:22 GMT -5
No New Posts Birthday and Holiday Wishes

39 243 Happy Thanksgiving to our Gees family!
by FlagmanRuss
Nov 23, 2017 7:52:15 GMT -5
No New Posts The Worry Box-Where is a member?

Looking for, or concerned about a member that you have not seen in awhile? Going away or not going to be around for awhile? List it here

N/A N/A No posts have been made on this board.
No New Posts Sharing Comfort and Support

A place for prayers and thoughts concerning those having a difficult time or for those members who have passed away.

72 671 Act with dignity
by mack
May 8, 2015 15:10:19 GMT -5
No New Posts Games Including Chutes & Ladders

Play or post on-line games. If you don't know what a "Ladder" is, I can't explain it, but here's the spot for this popular game.

74 3,198 E) - Movie Ladder - 1st Letter
by ev
Oct 20, 2013 9:30:33 GMT -5
No New Posts Jokes & Humor

Go ahead, Make us laugh! WARNING: This board is restricted to members only. Content in this section may be adult in nature & offensive to some. Never the less, let's try not to offend. Moderators will remove items which cross the line. 18 and over please

N/A N/A No posts have been made on this board.
No New Posts Faith and Values

A place for topics relating to your faith & beliefs

N/A N/A No posts have been made on this board.
No New Posts Member Hobbies

What is your hobby? Share it & discuss your hobby here (No Selling Or Solicitation In This Section Please)

28 222 Quilting.
by holly
Sept 16, 2017 9:17:28 GMT -5
No New Posts Poetry / Writing / Deep Thoughts/Book and Movie Reviews

Have something that you wrote, located or saw that you would like to share? Place it here.

262 1,278 A wistful poem
by omahhope
Oct 22, 2015 16:06:07 GMT -5
No New Posts Photo Album

Have pictures to share? Let's see them! Yourself, Family, Pets, Cars, Bikes, etc. Are all welcome. (No nudity)

78 557 Test
by kimaroo
Oct 11, 2013 7:35:00 GMT -5

Refugee Recipees Members only

Board Threads Posts Last Post
No New Posts Refugee Recipes

4 13 Glorious One Pot Meals
by kimaroo
Aug 7, 2010 15:53:26 GMT -5
No New Posts Cooking Tips

6 61 Kale Cookery
by FlagmanRuss
Jan 12, 2017 9:35:22 GMT -5
No New Posts Breakfast Foods

11 14 Sausage & Egg Casserole
by karenreese
Oct 23, 2008 4:53:26 GMT -5
No New Posts Appetizers

12 29 Wanted Eggnog Recipe
by Ditzy
Dec 29, 2008 22:08:57 GMT -5
No New Posts Meats & Main Dishes

40 54 Mexican Chicken Breast
by Ditzy
Feb 24, 2009 19:57:43 GMT -5
No New Posts Seafood

3 6 Tilapia Tacos from You Tube
by Diana
Mar 18, 2008 13:06:57 GMT -5
No New Posts Slow cooker / Crock pot

13 36 Mac & Cheese
by deluvly
Mar 9, 2009 20:32:34 GMT -5
No New Posts Sandwiches

Hot or Cold

2 6 Frito Dogs
by crowquill
Mar 3, 2008 13:19:46 GMT -5
No New Posts Pasta

3 6 Chicken Casserole – Italian
by pokemom
Apr 9, 2009 20:51:12 GMT -5
No New Posts Salads

Potato Salad, Macaroni Salad, & More

16 28 Broccoli slaw
by caliegirl
Jun 18, 2010 14:34:32 GMT -5
No New Posts Casseroles

10 22 Mac & Cheese
by flfairlady
Apr 23, 2009 22:17:43 GMT -5
No New Posts Vegetables & Side Dishes

32 87 Texas Caviar
by Galadrial
Oct 20, 2012 16:53:51 GMT -5
No New Posts Soups, Sauces & Dips

38 115 Vegetable cheese soup/stew
by holly
Apr 14, 2012 12:12:09 GMT -5
No New Posts Desserts

Cakes, Pies, Cookies. etc.

59 157 Toffee Cookies Crispy,Chewy
by holly
Dec 25, 2012 8:38:06 GMT -5
No New Posts Holiday Foods & Ideas

11 66 St. Patty's Day Simple Idea
by joannemor
Mar 16, 2009 21:44:26 GMT -5
No New Posts Vegetarian Dishes

10 23 Mung Bean recipe
by momtom
Feb 1, 2009 9:23:19 GMT -5
No New Posts Breads & Rolls

11 13 Cheddar Bacon Ranch Pulls
by Galadrial
Jan 25, 2013 22:17:14 GMT -5
No New Posts Beverages

6 16 Pink lemonade dump
by Galadrial
Feb 25, 2012 9:33:30 GMT -5
No New Posts Diet Recipes

1 3 100 calorie snacks
by gizmosmom
Jan 27, 2007 8:37:01 GMT -5
No New Posts Miscellaneous Foods

12 17 Apple Butter
by msmom5655
Oct 13, 2008 0:25:54 GMT -5

Instructions, Tips, Suggestions & Questions

Board Threads Posts Last Post
No New Posts Board Use Instructions, Tips, Suggestions & Questions

How to use the MSRefugee board & settings.
New Account Registrations Tips
Login HELP Available
How to change or recover your P/W or Display name.

154 1,014 Diana has accepted the position of MODERATOR.
by FlagmanRuss
Dec 30, 2014 9:03:34 GMT -5

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