Members Getting Aquainted

Board Threads Posts Last Post
No New Posts MS REFUGEES, our name, our group

This group started as a community helping each other on a board sponsored by a major drug company. When that company discontinued their message boards the group decided to find a New Home... we became MS Refugees.

3 9 How we came to be MS Refugees
by staff
Mar 23, 2012 9:07:31 GMT -5
No New Posts Contact List By State/Country

A place to search by location. Adding yourself to the list is entirely Voluntary.

N/A N/A No posts have been made on this board.

Living With Multiple Sclerosis

Board Threads Posts Last Post
No New Posts General Questions, Answers and Ideas About Living With Multiple Sclerosis

How has MS affected you? How do you deal with the necessary changes? Members Tips!

2,521 25,069 Dating with Disability
by FlagmanRuss
Mar 11, 2010 10:08:41 GMT -5
No New Posts MS Stuntman's Association

I originated this tongue-in-cheek humorous way as a way of dealing with the creative twists & twirls, slips & falls. Obiviously it resonated with many others. It's a lot more funny after... not so much if we end up injured.

7 190 MS STUNTMAN'S ASSOCIATION
by FlagmanRuss
Jul 22, 2017 14:35:19 GMT -5
No New Posts Assistive Aids for Living with MS - 2 Viewing

Discussions on all temporary uninstalled assistive devises: wheelchairs, scooters, canes, braces, jar openers, clothes hooks, clamp-on or suction cup handles, etc.

Sub-boards: Bathroom Devises, Pads & Cushions, Braces & Functional Stimulators, Canes & Crutches, Walkers & Rollators, Wheelchairs, Scooters & Powerchairs

253 1,612 Researching Current Rollators
by FlagmanRuss
Jan 9, 2019 11:41:49 GMT -5
No New Posts Home Mods for Disability

Discuss all permanent installed assistive items here.

Sub-boards: Bathroom , Stair Lifts, Ramps

26 207 A Ramp, A Deck... Walker, Scooter, WC
by FlagmanRuss
Jan 13, 2019 12:16:07 GMT -5

Newly Diagnosed & Those In Limbo

Board Threads Posts Last Post
No New Posts Newly Diagnosed with Multiple Sclerosis and Those in Limboland

Ask questions here. No question is stupid and information is ammunition in the war against MS!

195 1,751 Police, driving, MS and DUI?
by FlagmanRuss
Sept 28, 2016 9:14:52 GMT -5

A MS Referance Library

Board Threads Posts Last Post
No New Posts Front Page MS News

600 1,274 Testing copy and paste on new findings
by holly
Jan 10, 2019 12:12:52 GMT -5
No New Posts General MS Information

40 72 Coban disposable wrap for compression, swelling.
by FlagmanRuss
May 22, 2018 19:08:16 GMT -5
No New Posts Testing & Diagnosis

42 78 Neuropsychological Evaluation
by staff
Dec 15, 2008 14:13:24 GMT -5
No New Posts MS Symptoms

Except as noted

32 42 Re: Exercise
by staff
Dec 19, 2008 19:53:29 GMT -5
No New Posts Mobility Symptoms

6 43 Right Leg vs. Left Leg
by FlagmanRuss
Jul 15, 2017 8:26:59 GMT -5
No New Posts Relapses / Exacerbations / Flare Ups

18 20 Exacerbation vs. Pseudo-Exacerbation
by staff
Dec 19, 2008 19:56:01 GMT -5
No New Posts Vision & Optic Neuritis

7 21 Optic Neuritis...no MS
by FlagmanRuss
Jul 10, 2016 19:53:52 GMT -5
No New Posts Cognitive Symptoms

43 68 Cognitive-Behavioral Therapy Improves Fatigue in MS Patients
by Shelly1
Jun 3, 2014 10:51:07 GMT -5
No New Posts Bladder, Bowel Symptoms

16 87 Bladder Issues Article NMSS
by FlagmanRuss
Oct 2, 2015 19:47:06 GMT -5
No New Posts Pain & It's Treatment

11 14 Acuncture Superior to Usual Care 4 Chronic Pain
by Shelly1
Sept 11, 2012 17:44:55 GMT -5
No New Posts MS: Brain & Central Nervious System

96 126 Brain atrophy and disability progression in MS patients
by Shelly1
Mar 7, 2014 9:39:06 GMT -5
No New Posts Immune System

28 38 Cytokine Responses to Resistance Training
by FlagmanRuss
Sept 27, 2013 9:35:48 GMT -5
No New Posts Experimental MS Treatment - 1 Viewing

64 88 Adding Estriol Reduces MS Relapse Rate
by Shelly1
May 4, 2014 9:43:32 GMT -5
No New Posts Research Studies

37 64 Man brain dead in drug trial
by FlagmanRuss
Jan 18, 2016 20:13:03 GMT -5
No New Posts Chronic Cerebrospinal Vascular Insufficiency (CCSVI)

Further Research has DISPROVED this theory of a possible cause of MS

203 705 Italian blood flow to the brain theory/study appears to have
by Shelly1
Aug 25, 2014 13:40:01 GMT -5

Treatments

Board Threads Posts Last Post
No New Posts FDA Approved Treatments for Multiple Sclerosis

general discussion

124 850 Steroids and Bloating
by holly
Dec 5, 2016 19:48:30 GMT -5
No New Posts Avonex, (Interferon) IM Injection

65 398 An Anniversary
by sharonkerry
Dec 5, 2018 21:38:38 GMT -5
No New Posts Aubagio (Teriflunomide) Oral

17 137 Generic Aubagio???
by sharonkerry
Dec 6, 2018 22:22:48 GMT -5
No New Posts Betaseron, (Interferon) Injection

23 76 Copaxone to Betaseron...thoughts?
by FlagmanRuss
Jan 15, 2011 9:13:52 GMT -5
No New Posts Copaxone, (glatiramer acetate) Injection

312 2,447 Copaxone Shipment Due YESTERDAY....
by coody54
Aug 13, 2018 4:42:24 GMT -5
No New Posts Extavia, (Interferon) Injection

2 2 Extavia
by staff
Feb 15, 2012 11:31:08 GMT -5
No New Posts Gilenya (formerly fingolimod), Oral

65 248 Anyone Else on Gilenya Experience Increased Allergies?
by Diana
Sept 27, 2015 17:47:39 GMT -5
No New Posts Glatopa (Glatiramer Acetate), daily 20 mg injection

Generic Copaxone

1 1 Glatopa.com
by FlagmanRuss
Dec 16, 2015 9:50:29 GMT -5
No New Posts Lemtrada™ (alemtuzumab) (formerly Campath 1-H) IV Infusion

25 40 Lematra?
by mack
Apr 16, 2018 10:54:13 GMT -5
No New Posts Novantrone & Cytoxan, IV Infusion

(Immune Suppressing Chemo Agents)

46 207 Leukemia from Novantrone?
by Ditzy
Jun 14, 2012 19:28:11 GMT -5
No New Posts Ocevus (Ocrelizumab)infusion 6 month

9 90 Done with 1st Ocrevus infusion.
by holly
Nov 22, 2018 12:28:50 GMT -5
No New Posts Plegridy Interferon Injection

0 0 No posts have been made on this board.
No New Posts Rebif, (Interferon) Injection

46 328 Drug Research
by holly
Feb 11, 2013 11:11:54 GMT -5
No New Posts Rituxan (Ocrelizumab) IV Infusion

FDA approved for Reumathoid Arthritis, OFF LABEL use for MS (Immune Suppressing Chemo Agent)

14 63 Rituxan Outperforms A Half-Dozen Multiple Sclerosis Therapie
by FlagmanRuss
Feb 1, 2018 9:07:58 GMT -5
No New Posts Tecfidera (formerly BG12), Oral

55 380 facial skin problems tecfidera
by Shelly1
Mar 24, 2015 5:55:48 GMT -5
No New Posts Tysabri, (natalizumab) IV Infusion

483 3,450 Officially back on Tysabri!
by holly
Nov 22, 2018 12:36:04 GMT -5
No New Posts MS Treatments & Meds In The Pipeline

Here's the spot for news on new drugs being tested and developed.

262 629 Is Siponinod the right fit
by mack
Apr 27, 2018 10:26:11 GMT -5

Symptom Medications and Treatments

Board Threads Posts Last Post
No New Posts Symptom Medications useful in Multiple Sclerosis

Here's the place to discuss the meds which make MS easier to live with.
Treatment of Relape / Excaserbation symptoms included here.

425 2,871 Anyone try new Trokendi XR for pain?
by Puppyducky
Nov 23, 2017 8:31:53 GMT -5
No New Posts Steroids IV & Oral

Discuss IV Steroids like Solumedrol & Oral like Prednisone here... They help shut down Excaserbations... the down side

4 16 small dose of steroids-BIG difference
by FlagmanRuss
Nov 29, 2017 9:32:46 GMT -5
No New Posts Botox for Bladder

Discuss the pros & cons of Botox injections for bladder control here

6 10 Botox for OAB (Over Active Bladder)
by FlagmanRuss
Nov 6, 2014 19:04:39 GMT -5
No New Posts Ampyra / 4-AP (Predecessor)

Sustained release Ampyra, Fast acting Compounded 4-AP for improved nerve conduction.

22 165 Ampyra... it's plusses & minuses
by janeposk
Nov 12, 2014 6:25:51 GMT -5
No New Posts Low Dose Naltrexone

Information and discussions about LDN use for Multiple Sclerosis. Questions Welcome!

55 354 LDN - To stay with it or let it go
by FlagmanRuss
Oct 30, 2018 18:05:37 GMT -5
No New Posts OFF Label use of Prescription Drugs

Prescription Drugs used Off-Label Drugs for MS as directed my your physician.

112 662 Too much of a good thing
by holly
Nov 23, 2017 16:05:10 GMT -5
No New Posts Cannibus

Medical Marijuana for locations where it's medical use is now legal

12 114 CBD oil
by gypse2
Feb 11, 2018 16:46:00 GMT -5
No New Posts Supplements & MS

Vitamins, Minerals and Herbs useful for Multiple Sclerosis

59 306 Vitamin D & falls...
by FlagmanRuss
Apr 24, 2018 15:20:54 GMT -5

Diet, Exercise, Physical Therapy

Board Threads Posts Last Post
No New Posts Exercise, Physical Therapy, Theraputic Activities

197 1,791 Equine Therapy
by FlagmanRuss
Apr 14, 2018 10:35:45 GMT -5
No New Posts Diet

The FOOD we eat.

Sub-boards: MS Diet, Low Calorie Diet, Low Carb Diet

96 960 My No Cravings Diet...
by FlagmanRuss
Dec 14, 2018 20:17:04 GMT -5

Special Issues

Board Threads Posts Last Post
No New Posts Disability, Claims & Insurance Information

Discuss Disability and Insurance

293 2,047 Has anyone gotten on disability (not SSDI) without a lawyer?
by holly
May 18, 2017 11:58:00 GMT -5
No New Posts Work Related Issues

Looking for work, Leaving work or just flat dealing with it.

Sub-board: Work At Home

91 668 SSDI and Retirement benefits
by ressa
Sept 8, 2013 17:12:24 GMT -5
No New Posts Scams & Ripoffs

Unscrupulous practices designed to separate us from our hard earned money.

107 257 Latest Phone: Grant SCAM...
by FlagmanRuss
Mar 20, 2018 12:26:28 GMT -5

Off Topic

Board Threads Posts Last Post
No New Posts Free For All - 1 Viewing

1,284 10,079 Bad fall
by mack
Jan 6, 2019 11:37:37 GMT -5
No New Posts The Pressure Cooker!

If you need to blow off some steam, this is the place.

646 7,151 I am so sick and applying for grant money for Aubagio is mur
by Diana
Jan 10, 2019 17:49:03 GMT -5
No New Posts Birthday and Holiday Wishes

47 262 Happy Holidays to all our Gees family!
by FlagmanRuss
Dec 26, 2018 10:04:06 GMT -5
No New Posts Sharing Comfort and Support

A place for prayers and thoughts concerning those having a difficult time or for those members who have passed away.

25 182 Act with dignity
by mack
May 8, 2015 15:10:19 GMT -5

Instructions, Tips, Suggestions & Questions

Board Threads Posts Last Post
No New Posts Board Use Instructions, Tips, Suggestions & Questions

How to use the MSRefugee board & settings.
New Account Registrations Tips
Login HELP Available
How to change or recover your P/W or Display name.

157 1,022

Forum Information & Statistics

Board Statistics
Threads and Posts
Total Threads: 11,485      Total Posts: 83,992
Last Updated: A Ramp, A Deck... Walker, Scooter, WC by FlagmanRuss (Jan 13, 2019 12:16:07 GMT -5)
Recent Threads - Recent Posts - RSS Feed
Members
Members
Total Members: 1,684
Newest Member: jamesonfineart
Most Users Online: 417 (Apr 2, 2008 18:28:02 GMT -5)
View today's birthdays
Members Online
Users Online
0 Staff, 0 Members, 5 Guests.
24 Hours
Users Online in the Last 24 Hours
2 Staff, 0 Members, 106 Guests.
FlagmanRuss, Diana